Links

These are a few of the Internet resource which I have found useful. Bear in mind that the Internet is an anarchistic media and it is wise to check any information you find with an appropriate professional. The Downs Syndrome Association do not necessarily support the views portrayed on these sites.

If you would like to add your site to our links, contact me.

Main Sites

National Downs Syndrome Association - Everything you need to know about DS

Scottish Downs Syndrome Association

Down Syndrome Education International or downsed international - A wealth of information, particularly on speech development. Includes on-line versions of a popular book by Sue Buckley

Dr Len Leshin (USA) - Dr Len Leshin, parent and paediatrician. Balanced medical advice on a number of subjects and links to international sites and medical references. A site I visit regularly

Independent Panel for Special Education Advice (IPSEA)

Makaton Vocabulary Development Project

Downs Heart Group

Mosaic Downs Syndrome UK website - support for parents of children and adults with mosaic downs syndrome

Bristol Down Syndrome Trust - Speech and Lanaguage and Numicon Sessions. See their leaflet.

Down's Syndrome International Swimming Organisation

Fellow DSA Branch Sites

I'm sure there are more Branch sites out there - just let me know who you are and I'll add a link :-)

Swindon Down's Syndrome Group

London Branch

Downs Syndrome OK formaly (South West Thames Branch)

Downs Syndrome North East

Calderdale, Halifax, West Yorkshire

East Berkshire Down's Syndrome Support Group

Other Sites

Downs Syndrome - beyond the myths An outstanding site sponsored by the Western Australian Museum & the Down Syndrome Association of Western Australia. It's actually a Photographic Exhibition by Mona Neumann. The site has beautiful black and white photographic images combined with DS myths, with wonderfully written essays about that dispel the myths.

Home Start - Get help from a volunteer to help you with the children, keep medical appointments or just someone to listen and help you.

Chris Gravells Page - Comprehensive list of UK resources for Downs Syndrome

Parents for Inclusion - Parents helping parents so that disabled children can learn, make friends and have a voice in ordinary school and throughout life. We are a national charity based in London.

Bike Trail - Run by branch member Sue Oakley, Bike Trail offer cycles for hire from their outlets in Lynton and Yelland, covering the most spectacular and varied North Devon scenery. Discover the heart of Exmoor, the breathtaking Meizitang Gel Kapseln North Devon coast and the Tarka Trail. They make cycling easy and enjoyable for all ages and abilities and we make a special effort to cater for people with disabilities and special needs.

Father's Network The Fathers Network celebrates and supports fathers and families raising children with special health care needs and developmental disabilities.

Heart n Soul work to define, support and champion the cultural and social expectations of people with learning disabilities.

Special needs family friendly fun - enhancing the quality and fun of family life with special needs.

Brainwave - The Brainwave Programme rests on the theory of neuroplasticity and our qualified and experienced staff are drawn from the mainstream fields of physiotherapy, psychology and education. All Brainwave therapists receive additional training in cognitive and communication techniques

Alison Penman Regional Family Coordinator (South West) 01823 433591 or 07714 999414

Out & About & Away We are a Bristol based 'not for profit' organisation that was set up and is run by two carers, Julie Owen and her son Alex. If you're a wheelchair user with a zest for life, or a child with special needs looking for fun and adventure, or even an older person who's fed up with staring at the same walls we can put a smile on your face. Whether you want to see a show, visit a friend, go clubbing,  attend a church, or have a fun weekend away we can help. We will organise everything for you. You can use your Direct Payments to purchase trips. BS1 4QD Tel: 07545565257.

Listening Partnership is a forum group for young disabled people, aged 13-25. Young people meet one evening a week to discuss rights as young disabled people, do activities, meet new people and have fun. Support and transport are available, we work closely with BCC Chilren & Young People's Services, joint work includes staying at residential activity centres. New members welcome, contact Sarah Howard to try a group, no obligation to join.

Carers Direct is a national information, advice and support service for carers in England. Available online at www.nhs.uk/carersdirect and as a free, confidential helpline seven days a week on 0808 802 0202, it provides accurate, relevant information Meizitang Kapseln for carers and those who support them.

 

Other resources pages

1800wheelchair.com
          

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